Archives for category: Breast Cancer

So my post chemo cycle is like this. Morning after blah. Next two days really blah as I have prednisone head and water retention, although I stop puffing like a balloon middle of the third day. Then last night I just went to sleep and feel a lot better so far today.

It’s really important to sleep, drink water, eat stuff you like that’s easy. I’ve become enamored of oatmeal with butter and cheese on those days and small bits of dark chocolate. Chicken soup is good too.

My mood feels a lot better too. Part of staying in the moment is recognizing you feel like crap and just letting that feeling persist. Not much you can do otherwise. Just relax, crochet, watch a funny movie but don’t berate yourself for not being happy. The big difference is to let go of the crap moment when it’s gone. Don’t hold on to it. But realize it might come back. It is a weird place to be in.

Today the sun is shining, although we have fog and I have some energy to arrange stuff. Am thankful for that.

And I am half done with this chemo, I handled an increased dose just fine. Many good things.

It’s been a while since I’ve posted. Mostly because we have had visitors – first M’s brother and then my dear friend Abigail. So it’s fun and the weather has been totally fabulous – bright clear sunshine and gorgeous mountain views.

But anyway, my counts dropped and my hair fell out. Started around my birthday, had it cut to about 1cm all around, and it’s been falling out a lot. In this case a picture is worth a thousand words. So I guess I will post some pics. But I will do that from my computer since it doesn’t seem to work from the iPad.

But the point is that I have a cute wig, although it’s not bad to be bald and I have cute hats.

I had my second chemo today and I am a little hopped up on prednisone, so i think I will post more later.

I don’t consider myself to be religious. I don’t know what I believe in, although I do believe that spiritual connections exist.

The start of my own  breast cancer experience is bracketed by my mother’s death from breast cancer 20 years ago. Exactly 20 years ago.

I had a mammogram and ultrasound Dec 20. The radiologist looked at the lump and said – Fibroadenoma, probably benign, but to be sure we can biopsy. Or follow. I said, biopsy. Good thing I did. The next day, Marco and I found out that it was not benign, but rather poorly differentiated and thus malignant. This was Dec 21, and it was the day 20 years ago that we brought my mother home from the hospital, to die.

Someday I will write more about my mother’s experience. For now – she continued on a steady decline and died on January 14, 1991.  My sister, two aunts, hospice nurse and myself were all there. My father had just left for work. It was a bit past 10AM in the morning, a mild, sunny day. It was peaceful. As sad as it was, and while a part of me will always feel it was unfair that she died so young, there was something about it that seemed so natural.

On January 14, 2011, Marco and I were driving back from meeting my oncologist. He was very optimistic, I had a good prognosis, my scans were clear. We felt more hopeful than any time before Dec 21, when we first learned that the lump was cancer. At one point, we were driving down the A6, south of Bern, looking at the Alps – you can see the Jungfrau, Eiger, Moench if it’s clear enough. It was a gorgeous afternoon. It’s a spectacular view, if you’ve not seen it. The Alps here really remind me of quiet, grave, learned men and women, watching over us.

And at this one point,  I just had this feeling – tingle, puff of air, whatever, and somehow my mother and I let go of each other. Not that we don’t care for and watch out for each other, but rather, our paths won’t be the same.

And when I checked the time it was a little after 4PM, Central European Time, 6 hours later than Eastern Standard Time – 10 AM in Pittsburgh.Maybe it’s an angel, maybe the hand of some god, or maybe my subconscious rationalizing new information.

Whatever it was, it was a profound moment for me. The part of me that always has to make a joke wants to queue Twilight Zone music…..because it feels a little squirrly to be profound.

Today I started chemotherapy. You’d think that I would actually know the names and classes of the drugs that I am receiving, but I don’t at the moment. It’s ok. Next time I’ll write them down from the bags or see if I can read my doctor’s handwriting. It doesn’t really much matter… I’m more a behaviorist. What they give me matters, but the science part is less interesting to me than how it all works together, if that makes any sense at all.

I just have to say that I love Swiss health care so far. So organized. My regular doctor gives me this grid with all my meds and when I take them. And the oncologist gives me an even more detailed grid with specific days of the week and when I take which drug. Maybe they do that in the US too now – I don’t know, but this is a fabulous set up.

At the same time, there’s a bit more autonomy. When I went into the hospital for my lumpectomy, I brought all of my prescription meds, and took them. When I was released, I packed up, the nurse walked me to the elevator and wished me well. No wheelchair. You also walk yourself up to the room, and you walk down to the consultation room to see the doctor. I really like it.

Hmm.. haven’t said anything about the lumpectomy. Well, that went really well. Small scar parallel to the floor under my arm where the lump was removed, and underarm perpendicular where they removed the lymph nodes. The pathology looks good – no evidence of mets or node involvement, tumor was 3cm, so I’m a IIa. But the tumor grade – level of differentiation – and a measure of aggressiveness – is 3, hence the chemo. Bone, liver, lung and abdomen all look clear. So all in all, good prognosis.

Anyway, I had 4 bags of stuff today. Two chemo drugs (cytoxins?) and some antinausea and some prednisone. I think I have a little prednisone buzz at the moment, but no nausea. Just feel a little wired and weird. That will go away, but then I’ll probably become tired and loose my hair. But, I have a really cute wig waiting for me.

Should post more regularly now… this is more or less catch up. Also, I suspect that most of my posts will deal with my medical experiences for a while…. because I don’t see myself cooking much inventive stuff for a bit, and I do seem to have this all consuming schedule of medications and doctor visits. It’s a full time job!

Although I don’t want to be defined by my breast cancer, I suppose some details are useful. I’m about to see the oncologist tomorrow for chemotherapy. After that, I will have radiation therapy, followed by hormone (or anti-hormone) therapy.

I appear to have clear margins, and am node negative, so those are good signs. The tumor was/is aggressive, hence the need for chemo. I had a lumpectomy and that’s healing nicely.

I hate medical tests. I hate waiting for the results and thinking that it’s a bad result, I’ve failed again. This is because I have test anxiety in general. That basically sucks.

But the prognosis is good…….