Ekphrasis Post. Go to flickr.com/explore and write a post inspired by the image. Can you link it to your health focus? Don’t forget to post the image!

 

http://www.flickr.com/photos/38382651@N04/7047718753/

 

You may have to click on the image – I’m still trying to figure out linking stuff.  It’s a beautiful coastal shot of waves breaking on a gorgeous day.  You can almost hear the waves, smell the sea and feel the spray on your face. It’s freeing….beautiful in all its abandon. Rhythmic, as the waves come in and go out. The sea is amazing, mesmerizing. There  are still places where you can be overwhelmed,stunned by the beauty of the world. And this beauty has the capacity to take you our of your pain, discomfort, perhaps for a little while and restore you. Even though you are merely an observer, surrounding yourself with beautiful images is a wonderful thing. Going to a place of beauty is even better if you can – but if you can’t, imagination is a wonderful thing.

I try to use my imagination every day – it is restorative, restful, and it helps me recover.

I write about my health because… Reflect on why you write about your health for 15-20 minutes without stopping.

The smart ass answer is that I write about my health because it’s what consumes me at the moment.  But of course, there’s more to it than that.

I write in general because it’s good for me. Writing helps me organize my thoughts, it helps me think through problems, and create associations in my head, thus strengthening those associations. Writing is therapy – writing something out – even if the topic is upsetting – helps me to deal with it, lining up my thoughts and ideas, giving  me a chance to organize those thoughts and ideas. By nature I am not an organized person. My brain works in a seriously non-linear fashion, and I don’t go from point A to B to C. My working memory is wonderfully  funky. Indeed, it was funky before I got breast cancer and now it’s a little funkier after stress and chemo and probably menopause. And who knows what these meds I take do to my working memory- meds that stop the production of estrogen in my body to reduce my risk of a breast cancer recurrence.  As much as I love the erratic funkiness of my working memory, sometimes I do need to get to the point.  So I write for selfish reasons. I also write because I love word play – and I like to see what I can do with the absurdity of life. My life, and the lives around me.

Sometimes I’m angry and writing helps me work through my anger. Sometimes I’m anxious – writing helps there too.

I write about breast cancer because I’ve had my own personal experience  and it flows easily.  There’s so much to say about it – how we get through the medical bits, how we feel, how we frame cancer in daily life.  We are dependent on philanthropy, governments and researchers to cure and improve treatments for this and other cancers. We need to raise our voices to direct how those resources will be used. I feel strongly about other topics too –  I feel very strongly about bullying people based on size, treating people of size as though they are not quite human, stupid, unable to make decisions for themselves and some pox upon humanity. So I will speak up about attempts to make fun of, denigrate or provide useless diet advice to people based on size. This is not funny, it’s mean, and the scientific basis doesn’t hold. I don’t like it when people with mental illnesses are treated pretty much the same way.I also write about mental illnesses too – they are poorly understood and stigmatized. I have a lot to say about anxiety. And variations in learning – I have what we call Attention Deficit, and it’s a major player in my wonderfully funky working memory.  I write about things that are close to me because writing flows, and well, it’s fast and easy. But I suppose I also have something to say in this regard.

Even if you are well organized, I think writing can help you too. You don’t have to write well, you just have to write down what you’re feeling. We all face stressors – health, family, financial, occupational – writing –  in private – can help you sort your feelings and your options. To write publicly and to share your thoughts is also pretty great – who knows, you might help someone.  And someone might help you – new ideas! Writing is probably the most inexpensive, and yet most personally tailored therapy you’ll ever find. Especially if, for some reason, you lack a good therapist, don’t believe in one, or don’t have coverage. Which brings us back to health, the need for universal coverage, including mental illnesses.

In the meantime, though, there is writing. ;-p

Superpower Day. If you had a superpower – what would it be? How would you use it?

So many superpowers from which to choose. Although, I suppose I would like to have the magic nasty cell detector. As soon as a “normal” cell becomes something else, I’d like to detect it and kill it. Whoosh!  This way, I would be able to find cancer when it’s a single cell and make it stop. Maybe it would work on other stuff too, like infections or allergic reactions – identify wonky cells and whoosh! them away.  I guess it could be a sort of funky DNA detector. And it would have other uses too…..

Cancer, that’s a given, maybe infections and allergies. But maybe also at the point of fertilization, cell division, it would right the wonky dividing cells and as if by magic, everything would be ok. It would also be nice if not only to detect wonky cells, the funky DNA detector makes it possible to regenerate cells. I know! Like the original Star Trek when Dr McCoy would point that little buzzy thing at you and cure all manner of ills.

But for now, we just have to take care of ourselves and hope. 😉

Quotation Inspiration. Find a quote that inspires you (either positively or negatively) and free write about it for 15 minutes.

Time flies like an arrow, fruit flies like a banana – Groucho Marx

So what does this have to do with health? It makes me laugh, and laughing is good. It’s an inconsistent, absurd thought that often takes me out of despair, and into curiosity, wonderment and makes me want to solve a problem. Sort of meditative for the non-ascetic, western girl.

I often try to find the silliness, the absurdity in my world. It reminds me that I am human, with the ability to think and to reason, and sometimes, I am a little in charge. A very little. Or at least I think so – I can always re-think a problem.

I let myself feel anxiety, grief, sadness, anger, confusion, general pissed-offess (but I try not to direct it inward). I try really hard never to point that pistol of blame back at myself.

I don’t believe that things happen for a reason. Crap happens and we construct the reason to make sense of the crap. Sometimes we have the opportunity to turn crap into an adventure or a prison. That’s what makes us human.

Hmmm… might come back to this one later. It’s a bit odd….

Health Time Capsule. Pretend you’re making a time capsule of you & your health focus that won’t be opened until 2112. What’s in it? What would people think of it when they found it?

Hmmm…. I’d have two big piles of things.  First, body image, weight and health. In 100 years, I really hope we can express appreciation for ourselves, the way we look. No fat talk, no body hate.   I’d have a lot of dieting crap, showing that diets usually fail, and negative fat talk, showing how pervasive it is that we speak negatively about our bodies.  And then I’d pull together all of the evidence for Health at Every Size –  the idea that no matter what your weight, you can improve your health without thinking about your weight, but by making choices about what you eat, moving, and learning to love your body at whatever size. In fact, I’d have a copy of this blog post that I saw today which states this far more eloquently than I can.

http://danceswithfat.wordpress.com/2012/04/02/theres-always-something-you-can-do/….

The second pile would be all I’ve learned about breast cancer, my experiences and current standards of care. I’d have something about the importance of learning as much as you can, alleviating anxiety, and being hopeful. And I’d include something that differentiates between magical and positive thinking, like this:

https://3lainess.com/2011/07/14/optimism-better-than-magic/

The thing that kills women with breast cancer is a metastasis. Why do they occur? How do we identify those at risk? How to stop them! In 2112, I hope we’d have an answer.

I hope in 2112 we know more about prevention, detection and treatment.

I hope people would say “What’s a diet?” and  “We know a lot more about preventing all sorts of cancers!”

Hey, 2112 is a palindrome, like the word boob. Palindromes are cool,  breast cancer, not.

I’ll admit that I’ve been in a bit of a writing funk since January. On one hand, this is good news because I have nothing bad to report. On the other hand, it’s bad news because I need to keep writing for a whole host of reasons. Soooooo… I found this great thing online, and I’m going to do it. I’m one day behind, but here goes…

 The Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post each day in April. I hope you’ll join me in writing every day about health. It’s going to be a lot of fun and I’d love to see what you have to say about each of the topics, too. All you have to do to join is sign up here: http://info.wegohealth.com/HAWMC2012 and you’ll be able to start posting once April rolls around. Looking forward to writing with you!

Ok, so I’m a little late to the party and if you’re following me and decide to do it, so are you, but that doesn’t matter so much as you get out there and write. Or read!

e.

The loss and regrowth of my hair was the most obvious outward sign of my treatment and treatment progress. Many women who have breast cancer go through reconstruction, but I followed the lumpectomy – rads route. No need to reconstruct in my case. So, for the end of the year – here it is – the year in hair.

When I first lost my hair, I swore that I would start to color it as soon as I could. I’ve colored my hair for more than 20 years. As it grew back, I realized that it looked quite good as it was. There is nothing wrong with coloring your hair, but there’s nothing wrong with leaving it alone, either. We talk a lot about being positive with our bodies, the way we look – being comfortable in our own skin is important. And I feel comfortable. Very comfortable.

Not sure I’ll post again till the New Year – we’re getting ready to move and I’m packing. So Happy Holidays! On to 2012, and thanks so much for reading this year. Your support and comments have meant so much to me….

Elaine

The pics are in chronological order from 18.12.2010 through 23.12.2011 – my last haircut was 06.02.2011.

A little update. I actually have enough hair for a real haircut, so here it is – 19.01.2012…time to change my avatar too

And another update – the last is my hair, november 2012.

 

And so is the other one. Mammogram and ultrasound are clear. This is the first anniversary of my biopsy. I guess it’s the anniversary of my diagnosis too, though I didn’t find out till the next day. How do I count such an anniversary? Should I count the anniversary? Not sure….

I was thinking that I’ve come full circle, but that’s not entirely true. What’s more important though is that it doesn’t matter. It’s a different circle, a somewhat different plane.

I’ll write more later. Now, I just want to enjoy the holiday and finish this mad rush to pack.

Lots to be grateful for.

Today I had my mammogram. So if I psych myself out and think that there will be something bad, because I’ve suffered, I’m owed a good outcome. Or, I can influence the outcome with positive thoughts. Obviously, neither works. Magical thinking refers to the idea that your thoughts can influence an outcome. And while we don’t know exactly how attitude relates to the development of physical disease in the body, feeling good or bad about my mammogram today is not going to change the outcome.

Somehow in all of this mind body stuff, we began to think that we could control physical outcomes, like the development of cancer by a positive or negative attitude. We can’t. We can influence our coping skills and self care through attitude. Attitude impacts general well-being, I think. And we have to recognize that while depression and anxiety are sometimes “appropriate” feelings, we may not have to endure them. I’m all in favor of support meds and methods – anti depressants, therapy, exercise, meditation, pain meds, friends, or funny movies.

To me, I think the important thing is to recognize your feelings and go from there. Don’t feel guilty if you’re not feeling “positive”, let yourself feel the whole range of feelings whatever they are. Allow yourself to feel anger, anxiety, sadness. But don’t turn inward and blame yourself. When I have these feelings, I would seek some help – from doctors, family, support groups, etc. That’s one of my coping skills.

As for me, I’m reframing the mammogram to congratulate myself for doing it, and we’ll wait for the rest of the news as patiently as possible.

On Tuesday, the boobs and I have a date with the mammography machine. Boob sandwich. Since I’ve been on a low carbohydrate eating plan, this could be as close to a sandwich as I’m going to get. Ketchup and relish with that?

I am really hoping that this mammogram will be innocuous, because, as you know, this is my first mammogram post cancer diagnosis, lumpectomy, chemo and rads. I feel good, I feel strong, I don’t have a lot of anxiety. I’m trying to ramp down the magical thinking too…if I worry a lot it will be ok, if I don’t worry it won’t. Bah. But I have to deal in facts. My ultrasounds and exams have all been clear and I’ve felt nothing. I’ve had a crapload of treatment. And I know that whatever the outcome, I’ll deal with it.

I see my doctor on December 20 for ultrasounds, etc. Almost a year to the day of my diagnosis. But it’s just that, a year to the day, nothing less, nothing more. At least I’m trying not to infuse meaning in these dates, but to be present, in the present.

But anyway, think good thoughts for me and the boobs on Tuesday. It’s been a long year.