It ought to be easier to add photos to a freakin blog. But oh well, I see I have much to learn.

The occasional sunset

Anyway, taking a break from chemotherapy reactions and the resulting prednisone head, I thought i would add a few pictures of stuff. First up, to the right is a view of the sunset from our bedroom – probably from last month. Sometimes the sky is just spectacular.  The mountains are the Western Alps, near the Kanton of Fribourg – the region is called the Gantrisch. Some really spectacular views, will figure out more once I get posting photos down.
Here is a photo of the infamous Lily the Pup, adopted from a shelter in the North Carolina. Lily is 6 and she’s been with us for 5 years.  She’s a good companion, just a little complicated – lots of anxiety. But she’s a sweet girl and we don’t quite know what we’d do without her. She makes a big difference in our lives.  When I’m not feeling well, she sits on the bed with me and looks out of the window, sometimes she curls up against us as we sleep.  Now if we could just get her to ride in the car without trying to tear it apart. But oh well…

My companion, LilythePup

Here is a photo of the infamous Lily the Pup, adopted from a shelter in the North Carolina. Lily is 6 and she’s been with us for 5 years. She’s a good companion, just a little complicated – lots of anxiety. But she’s a sweet girl and we don’t quite know what we’d do without her. She makes a big difference in our lives. When I’m not feeling well, she sits on the bed with me and looks out of the window, sometimes she curls up against us as we sleep. Now if we could just get her to ride in the car without trying to tear it apart. But oh well…
Just below is a photo of hats and scarves that I’ve crocheted.  The wools are very cool, lots of funky colors, so it’s easy to hide mistakes. And I actually wear the hats since I am rather bald (if you see from the previous posts).    Hats are generally more useful than the scarves since it’s getting warmer.  

Hats and scarves that I have made

So, I am 3/4 of the way through with the first chemo – anthracyclines.  Which, I learned today are derived from a bacteria of all things! Here’s the link to wikipedia

Anthracycline

I’ll have one more of these on March 28 and then starting in April I’ll have 12 doses of taxol, weekly.

Taxol

Taxol is supposed to be less intense, and I won’t have to have as much prednisone. We hope.

But anyway, my response to the chemo has been good. My blood components drop to appropriate levels and then come right back up. Side effects aren’t horrible. Yes, I am quite bald, and my nose runs all the time.  Otherwise, ok. My stomach is a little wonky, however – to be expected. My new favorite food is oatmeal.  The worst part of it is really the prednisone – but I have to have it to tolerate the chemo.

So anyway, I feel a little buzzed, disoriented, but ok.  Since I had a boatload of prednisone, I’ll have wonky side effects from that – my eyes won’t work properly and my teeth will feel long in my mouth, and overall I’ll feel quite wacky.

For now I feel ok though. I have my activities planned – lots of crocheting – it’s mindless fun, angry birds – more mindless fun, and listening to music, some meditation perhaps and some tv viewing. Also napping and drinking water. Drinking enough seems to be a problem that I have, but i will try to increase that since it will help flush out the pred.

Looks like spring is coming to Switzerland. We have a week of sunny days, which can only help my mood.

Time  to break out the complicated drug regimen for the next 3-4 days. Lots of anti-nausea drugs and the like. But hey, it seems to work.  And my picc line is still intact. Good thing.

Below the cut…. me with very little hair – taken 15.02.2011

 

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Below the cut – me with all my hair cut off,   06.02.2011

 

 

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Below the cut – me with wig  – week of Feb 6th sometime.

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Haven’t really been writing much.  Too busy playing angry birds on iPad and crocheting hats.  Also have been waiting for my laptop stand to arrive so I can sit in bed or on my fainting couch and type. Am really trying not to type lying on my stomach since that seems to be really bad for my neck.

Mood has been up and down a bit. I’ve learned though that it’s really important to frame. So I work pretty hard on framing this as positive – I have good reason to think of my treatment in a positive light, because

  • Reasonably small tumor
  • Clear margins
  • Clear Lymph Nodes
  • No evidence of  mets
  • Really nice lumpectomy that looks like hardly anything has been done

The one negative factor is that the tumor grew quickly and aggressively. So I’m having chemo for that, something that might not have been suggested a few years ago.

Still it’s a little scary, and there are days when I worry. The most vivid frame of breast cancer that I have in my head is my mother’s experience, more than 20 years ago. But, there are a lot of differences, and history does not have to repeat itself. Well, it’s already not repeating itself since our surgical outcomes and prescribed treatments are so different.

Also, I’m trying to keep in mind that more and more women die with rather than die of breast cancer – it’s more of a chronic disease. And although we’re not worrying yet about recurrences – it’s important to realize that women live through recurrences. Not always the epic fail.

I don’t like the idea of fighting breast cancer – I mean, I want the cancer cells to go away, but I don’t like all the war metaphors. I don’t like fighting with my body. It is true that chemotherapy kills cancer cells. It also kills other fast growing cells like hair, and blood components, mucosal linings and so on. Cleaning is an interesting metaphor, but since I’m such a slob, that’s definitely not me. My brother in law suggested an image of love and eating the cells, which is sort of cool.   Have to think more about that….

We  have so many opportunities to hate our own bodies, women especially  – appearance, weight, and now cancer.  I don’t want to hate my body so I don’t want it to be at war, and I don’t want to think about failure within.

The other thing that’s been really interesting is learning to be in the present. Not to dwell on the past and not to worry too much abut the future. That helps a lot. To just enjoy each day as it happens. Mindfulness.  Breathing.

Right now I’m sitting in a sunny room, looking out the window. I can’t see the Alps since it’s a little foggy, but it’s beautiful anyway. Lily is sleeping on the bed and I’m sitting here typing. It’s not a bad existence. Tomorrow I have chemo and there will be a few days of fuzzy head, swelling, and general blah as I taper down the prednisone. But then I’ll be 3/4 done with the first set of chemo.  And spring is coming, so the days will lengthen. And soon this will all be done!

 

Today I want my life back. I want to take a bath without wrapping my arm in a plastic bag. I want to not think about the picc line in my right arm or the wonky feeling I have that’s just off center. I don’t want to see a doctor, have a blood test, and I wish I didn’t have that creepy feeling in the back of my head where my hair used to be.

I don’t want to be a cancer patient. I want my big old underwire bra back.

But I can’t have those things. Not right now anyway.

At the moment my life is consumed with the business of getting through chemotherapy, radiation and what follows. My life is consumed with side effects, anti nausea drugs and even laxatives. Cancer patient seems to pervade all aspects of my life. So many changes in a short time.

Thump.

And then I also realized that I need to manage things just a little bit better. I have these wide open days before me without structure. So I want to set some goals for things to do …. Meditate, nap, write. I have to set myself a schedule and follow through something that I’ve learned from having ADD. Once I realized that, the angst just went way, way down. And I had my life back again.

Interesting to think what this says about anxiety.

Although now I’m tired so I will save that for another day………

So my post chemo cycle is like this. Morning after blah. Next two days really blah as I have prednisone head and water retention, although I stop puffing like a balloon middle of the third day. Then last night I just went to sleep and feel a lot better so far today.

It’s really important to sleep, drink water, eat stuff you like that’s easy. I’ve become enamored of oatmeal with butter and cheese on those days and small bits of dark chocolate. Chicken soup is good too.

My mood feels a lot better too. Part of staying in the moment is recognizing you feel like crap and just letting that feeling persist. Not much you can do otherwise. Just relax, crochet, watch a funny movie but don’t berate yourself for not being happy. The big difference is to let go of the crap moment when it’s gone. Don’t hold on to it. But realize it might come back. It is a weird place to be in.

Today the sun is shining, although we have fog and I have some energy to arrange stuff. Am thankful for that.

And I am half done with this chemo, I handled an increased dose just fine. Many good things.

It’s been a while since I’ve posted. Mostly because we have had visitors – first M’s brother and then my dear friend Abigail. So it’s fun and the weather has been totally fabulous – bright clear sunshine and gorgeous mountain views.

But anyway, my counts dropped and my hair fell out. Started around my birthday, had it cut to about 1cm all around, and it’s been falling out a lot. In this case a picture is worth a thousand words. So I guess I will post some pics. But I will do that from my computer since it doesn’t seem to work from the iPad.

But the point is that I have a cute wig, although it’s not bad to be bald and I have cute hats.

I had my second chemo today and I am a little hopped up on prednisone, so i think I will post more later.